Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) | NHS

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a long-term condition that causes persistent fatigue and other symptoms that do not improve with rest or are worsened by physical or mental activity.

Symptoms of ME/CFS include severe fatigue, muscle and joint pain, headaches, sleeping problems, and issues with thinking, memory, and concentration. Symptoms can vary from person to person.

ME/CFS is diagnosed based on the patient’s medical history, symptoms, and ruling out other conditions that might be causing similar symptoms. There is no specific test to diagnose ME/CFS.

ME/CFS can affect anyone, including children, but it is more common in women and often starts during mid-20s to mid-40s.

The exact cause of ME/CFS is unknown, but it may be triggered by infections, immune system problems, hormonal imbalances, or psychological stress.

There is currently no cure for ME/CFS. Treatment focuses on managing symptoms and improving quality of life.

Treatment options may include medications to manage pain and sleep problems, cognitive behavioral therapy (CBT), graded exercise therapy (GET), and lifestyle changes such as pacing activities.

People with ME/CFS can manage their energy levels by pacing activities, taking regular rest breaks, and prioritising tasks to avoid overexertion.

While there is no specific diet for ME/CFS, maintaining a balanced diet with proper nutrition can help manage symptoms and improve overall health.

Yes, there are support groups for people with ME/CFS where they can share experiences, find emotional support, and get practical advice. These can be found both online and in local communities.

ME/CFS can significantly impact daily life, making it difficult to perform routine activities, maintain employment, and participate in social interactions due to persistent fatigue and other symptoms.

Yes, children can be diagnosed with ME/CFS, though it may be more challenging to diagnose in young people due to the overlap with other childhood illnesses and developmental issues.

ME/CFS can be a lifelong condition for some people, but others may experience periods of improvement or even complete remission.

Healthcare professionals play a crucial role in diagnosing ME/CFS, providing medical treatments for symptom management, offering guidance on lifestyle adjustments, and connecting patients with support resources.

Research on ME/CFS is ongoing, focusing on understanding the underlying causes, developing effective treatments, and improving diagnostic criteria to better assist those affected by the condition.