Getting help and support with frontotemporal dementia (FTD) (part 2/3)

Getting Help and Support with Frontotemporal Dementia (FTD) (Part 2/3)

NHS Services

The National Health Service (NHS) provides comprehensive support for individuals diagnosed with frontotemporal dementia. Your GP is often the first point of contact and can refer you to a specialist, such as a neurologist or a geriatric psychiatrist. These specialists can offer a more definitive diagnosis and tailor a treatment plan to manage symptoms. The NHS also provides various community services, including memory clinics, occupational therapy, and speech and language therapy, which are crucial for maintaining quality of life.

Local Authority Support

Local councils can offer social care services that assist both the person with FTD and their families. These services may include home care visits, respite care, and adaptations to your home to make daily living easier. Assessments can be arranged to determine your specific needs and how best to meet them. Councils can also provide information on local support groups and other resources tailored to dementia care.

Charity and Voluntary Sector

Numerous charity organizations in the UK offer invaluable support to those affected by FTD. The Alzheimer’s Society and Dementia UK provide information, helplines, and support groups. Organizations like Rare Dementia Support offer specialized resources for rarer types of dementia, including frontotemporal dementia. These charities often provide both in-person and online support, making it easier to find help that fits your schedule and needs.

Financial Support

Financial assistance can be crucial for families dealing with FTD. Disability benefits such as Personal Independence Payment (PIP) or Attendance Allowance may be available to those who meet the criteria. Carer's Allowance can also offer financial relief to those who spend a significant amount of time caring for someone with FTD. It's advisable to consult with a benefits advisor to understand what financial support you can access.

Education and Training

Educating yourself and your family about frontotemporal dementia is vital. Many organizations offer training programs and educational resources aimed at improving understanding and management of FTD. Workshops, online courses, and printed materials can equip you with the knowledge to better handle the challenges posed by this condition.