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Epilepsy - My Story
Introduction to Epilepsy
Epilepsy is a common neurological condition that affects the brain and causes frequent seizures. These seizures are caused by sudden bursts of electrical activity in the brain, disrupting the normal communication between brain cells. In the UK, it is estimated that around 600,000 people have epilepsy.
Discovering My Condition
My journey with epilepsy began in my teenage years when I experienced my first seizure. Initially, I was terrified and confused, not understanding what was happening to me. It took several visits to my GP and a series of tests at the neurology department to diagnose epilepsy. Learning about my condition was the first step in managing it effectively.
Living with Epilepsy
Living with epilepsy has been challenging, but it has also taught me resilience and self-awareness. Managing epilepsy involves taking daily medications, attending regular check-ups, and monitoring my lifestyle to avoid triggers like lack of sleep and stress. The NHS has been an invaluable support network, providing me with access to specialists, advice, and resources.
NHS Support and Resources
The National Health Service (NHS) offers extensive support for individuals with epilepsy, from initial diagnosis to ongoing management. They provide access to neurologists, epilepsy nurses, and support groups. Additionally, the NHS website offers a wealth of information on lifestyle tips, medication options, and emergency procedures. The Epilepsy Action and Epilepsy Society also run proactive campaigns to raise awareness and provide support.
Conclusion
Although living with epilepsy can be daunting, with the right support and management, it is possible to lead a fulfilling and active life. Sharing my story is my way of raising awareness and letting others know they are not alone in their journey. The NHS continues to play a crucial role in supporting individuals with epilepsy across the UK, ensuring they have access to the care and resources they need.
Frequently Asked Questions
What is epilepsy?
Epilepsy is a neurological condition that affects the brain and causes frequent seizures.
What causes epilepsy?
Epilepsy can be caused by various factors, including brain damage, infections, genetic factors, and sometimes the cause is unknown.
What are the types of seizures in epilepsy?
There are several types of seizures, including focal seizures, generalised seizures, tonic-clonic seizures, absence seizures, and more.
How is epilepsy diagnosed?
Epilepsy is diagnosed through a combination of medical history, neurological exams, and tests such as EEG (electroencephalogram) and MRI (magnetic resonance imaging).
What treatments are available for epilepsy?
Treatment options include anti-epileptic drugs (AEDs), surgery, dietary therapies like the ketogenic diet, and devices such as vagus nerve stimulators.
Can epilepsy be cured?
There is currently no cure for epilepsy, but many people can manage their condition effectively with the right treatment.
What should I do if someone is having a seizure?
Keep calm, protect the person from injury, place them on their side, and time the seizure. Do not put anything in their mouth. Call emergency services if the seizure lasts more than 5 minutes or if another seizure starts immediately after.
Can people with epilepsy lead normal lives?
Yes, many people with epilepsy lead normal, active lives with the right treatment and management plan.
Are there any lifestyle changes that can help manage epilepsy?
Yes, maintaining a regular sleep schedule, managing stress, avoiding alcohol and recreational drugs, and following a balanced diet can help manage epilepsy.
Can epilepsy affect pregnancy?
Women with epilepsy can have healthy pregnancies, but they may need to adjust their treatment plan and should consult their healthcare provider.
Is epilepsy hereditary?
Epilepsy can have a genetic component, but not all cases are hereditary. The risk may be higher if a close family member has epilepsy.
What should I discuss with my doctor if I have epilepsy?
Discuss your seizure frequency, medication side effects, lifestyle concerns, and any other health conditions you may have.
Can lifestyle modifications reduce the frequency of seizures?
Yes, regular sleep, stress management, a healthy diet, and avoiding seizure triggers can help reduce seizure frequency.
What support is available for people with epilepsy in the UK?
There are various support groups, online communities, and organisations like Epilepsy Action and Epilepsy Society that offer resources and support.
Can children outgrow epilepsy?
Some children may outgrow epilepsy as they get older, especially if they have certain types of epilepsy that are more common in childhood.
Useful Links
Useful links from: Am I affected by Sodium Valproate?
- NHS: Sodium Valproate Official NHS page providing comprehensive information on sodium valproate, including its uses, side effects, precautions, and guidance for those who may be affected.
- Epilepsy Action: Sodium Valproate UK-based charity Epilepsy Action provides detailed information on sodium valproate, discussing its role in treating epilepsy, potential risks, and the importance of regular reviews.
- Specialist Pharmacy Service: Risks of Sodium Valproate Specialist Pharmacy Service offers expert advice and analysis on the risks associated with sodium valproate, particularly concerning pregnancy and long-term use.
- The Fetal Anti-Convulsant Syndrome Association (FACSA) FACSA is a UK charity supporting individuals affected by fetal anti-convulsant syndrome, which can result from exposure to sodium valproate during pregnancy. The site offers resources, support, and advocacy information.
Useful links from: Epilepsy - What is Epilepsy and What Causes Seizures - NHS A to Z - Dr Gill
- NHS - Epilepsy Comprehensive guide from the NHS on epilepsy, its causes, symptoms, diagnosis, and treatment options.
- Epilepsy Action UK-based charity offering information and support for people affected by epilepsy, including resources about managing the condition.
- Epilepsy Society Leading charity providing information, support, and research towards the treatment and understanding of epilepsy in the UK.
- Young Epilepsy UK charity focused on children and young people with epilepsy, offering support, resources, and advocacy.
Useful links from: Epilepsy research: EEG | NHS
- NHS - Epilepsy This is the main NHS page dedicated to providing comprehensive information on epilepsy, including its causes, symptoms, diagnosis, and treatment options.
- Epilepsy Research UK Epilepsy Research UK is a charity dedicated to funding and promoting research into the causes, treatment, and prevention of epilepsy.
- Epilepsy Action Epilepsy Action provides a broad range of resources, support networks, and information for epilepsy patients, their families, and healthcare professionals.
- NHS - EEG (Electroencephalogram) This NHS page offers detailed information on EEG, a test used to find problems related to electrical activity of the brain, which is crucial for epilepsy diagnosis and management.
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- Ergsy carfully checks the information in the videos we provide here.
- Videos shown by Youtube after a video has completed, have NOT been reviewed by ERGSY.
- To view, click the arrow in centre of video.
- Most of the videos you find here will have subtitles and/or closed captions available.
- You may need to turn these on, and choose your preferred language.
- Go to the video you'd like to watch.
- If closed captions (CC) are available, settings will be visible on the bottom right of the video player.
- To turn on Captions, click settings .
- To turn off Captions, click settings again.