Living with Foetal Alcohol Spectrum Disorder (FASD), a mum’s journey (full version)

Fetal Alcohol Spectrum Disorder (FASD) is an umbrella term for a range of effects that can occur in an individual whose mother consumed alcohol during pregnancy. These effects can include physical, behavioural, and learning difficulties.

Alcohol consumption during pregnancy can interfere with the development of the brain and other organs in the fetus. This can result in a variety of lifelong physical, mental, and behavioural problems collectively known as FASD.

Signs and symptoms of FASD can include poor growth, distinct facial features, intellectual disabilities, behavioural problems, and issues with learning and memory.

FASD is diagnosed through a comprehensive evaluation that includes a physical examination, assessments of cognitive and behavioural function, and a detailed history of prenatal alcohol exposure.

There is no cure for FASD. However, early intervention and supportive therapies can greatly improve outcomes for individuals with FASD.

Interventions can include special education services, speech and occupational therapies, behavioural therapies, and family support services.

Parents may face challenges such as managing behavioural issues, navigating educational and healthcare systems, and dealing with the social stigma associated with FASD. Support from professionals and other families going through similar experiences can be crucial.

Schools can provide tailored educational programs, use consistent routines, offer small class sizes, and involve special education professionals to support the unique learning needs of students with FASD.

Healthcare providers can help with early diagnosis, provide referrals to specialists, create management plans, and offer ongoing support to families affected by FASD.

No amount of alcohol is considered safe during pregnancy. The safest option is to abstain from alcohol entirely while pregnant.

While FASD is directly caused by maternal alcohol consumption during pregnancy, paternal drinking behaviour can still impact the overall environment and support system, but it does not cause FASD.

In the UK, families can access support through NHS services, local health authorities, special education programs, and FASD-specific support organisations like NOFAS-UK.

Communities can raise awareness through public health campaigns, educational workshops, advocacy events, and by supporting FASD charities and initiatives.

Yes, adults can be diagnosed with FASD. If FASD was not identified in childhood, adults with FASD can still benefit from a diagnosis and receive appropriate support and interventions.

Long-term outcomes can vary. With appropriate support and interventions, individuals with FASD can lead productive lives. However, many will face ongoing challenges related to learning, behaviour, and social interactions.